Healthcare Law & Advocacy
Our Team
Full Credential Description
The Brain Tumour Charity is now the largest charity of its kind in the world, has committed over £50 million to date to research and won the Third Sector Award for ‘Charity of the Year 2018’. It supports research for a cure for the 140 different types of brain tumours that exist as well as research into ways that the lives of those with brain tumours can be extended and their quality of life improved. The charity also provides direct support to individuals and families, including counselling and practical information, for example, about welfare benefits. Over the last two years, the charity has been developing the BRIAN project (Brain tumouR Information and Analysis Network) which is a patient-led, pioneering online databank and web-app enabling patients to connect and make better informed decisions about this disease. By sharing their medical and quality of life data, this will accelerate research to find better treatments and a cure. Through the BRIAN project, The Brain Tumour Charity is aiming to acquire patient data from NHS Digital and Public Health England to provide to researchers to assist them in their work. However, in order to be able to provide this data to researchers, the charity needed a template agreement to ensure that researchers complied with the strict laws around data sharing. Fortunately one of the team used to attend Aston University and knew about the existence of the Aston Law Clinic, a legal clinic in the LawWorks network. Students at Aston University law school work under the supervision of a supervising solicitor to provide free legal advice on business issues - to start-ups, small enterprises and charities.
Qualifications & Expertise
Law Society Accredited Pro Bono Charity